Patient Resources

Living Well with Heart Failure 

If you or a loved one has recently been diagnosed with heart failure, you may be wondering what this means for you and your family. You are not alone as more than 90,000 Canadians are diagnosed with heart failure each year.

These short 2-minute videos will tell you what you need to know about living well with heart failure. You will learn about common heart failure symptoms, medications that will help you live longer and better, how your health care team can help, and other self-management strategies.

Download the CHFS Patient Diary below to keep track of your symptoms and medications, and share it with your health care team at your next appointment.

Visit the CHFS YouTube channel for videos available in French, Mandarin and Punjabi.

This initiative was made possible through funding from Novartis Canada.

 
 
 

 

CHFS Patient Diary

The CHFS has collaborated with patients to develop a Patient Diary to accompany you on your journey. We encourage you to download the document and complete it daily. Daily diary use is a proven method to keep track of your symptoms and recognize early signs of decompensation. We encourage you to bring the completed diary to follow up visits with your Health Care Providers.

Click below to download the Patient Diary.

 

 

COVID-19 and Heart Failure: A message for patients from the Canadian Heart Failure Society

What we know about the COVID-19 pandemic (also referred to as Coronavirus) is changing quickly. Every day we are learning more and more about the virus, how it’s transmitted and how it affects those who have it. Because you are likely hearing about COVID-19 from many different sources, we want to ensure you receive accurate information about your health and well-being, and what to do during this crisis.

Why is it important that I learn about COVID-19?

If you:
·    are 65 years old and older, and/or
·    have a compromised immune system, and/or
·    have underlying medical conditions, such as heart failure,

you have a higher risk of getting very sick if you contract COVID-19.

Even if you are at higher risk of getting very sick, there are ways that you can protect yourself and your family.

What websites have reliable information about COVID-19?

The Public Health Agency of Canada has very important information for ways that you can protect yourself and family from COVID-19. We encourage you to visit their website for reliable and up-to-date information.

The World Health Organization has information about COVID-19 in English, French, Spanish, Russian, Arabic and Chinese on their website.

Should I keep taking all my heart medications?

You should continue to take all your medications as prescribed, unless instructed differently by your care team. There are reports in the news that some heart medications may increase your risk of COVID-19. There is no evidence to suggest this is true. In fact, if you stop some of your heart medications you may feel worse from your heart failure and need medical attention.

What should I do if I have appointments booked?

During a COVID-19 outbreak in your area, it is wise to stay home as much as possible to lower your risk of being exposed. We also know that regular appointments with your health care team help keep your heart failure under control.
Rather than cancel your appointment, call ahead to learn about the arrangements your health care provider is making. For example, many places are offering appointments over the phone or over the internet as a ‘virtual visit’.

What if I feel unwell?

If you think you may have COVID-19, there should be a specific number to call in your province or area. They may direct you to a COVID-19 test location. If you need to leave your home for medical care, call ahead and tell them you have symptoms and a heart condition.

If you have a fever, use Tylenol-based products. Anti-inflammatories such as Ibuprofen or Advil or Aleve may make your heart failure symptoms worse.

If you think your heart failure is not well controlled, please contact your medical provider (heart failure clinic, primary care physician, internist, etc.).

What if I am worried and feeling isolated?

There are many others like you living with heart failure in Canada who feel the same way. Our patient partner organization, HeartLife Canada, has additional resources, created by patients and caregivers, for patients and caregivers. You can join their online support group on their website.

 

 

Amyloid Patient Questionnaires 

The following questionnaires are provided to patients as an amyloidosis screening tool. The questionnaires were developed by the Amyloidosis Program of Calgary and are endorsed by the CHFS.